Boy who had 1,000 epileptic fits a month now seizure free – due to medical cannabis

Alfie Dingley is one in every of just three humans inside the UK to had been surpassed an NHS prescription for the drug. Mum Hannah Deacon says the hashish has made a large difference to the 11-year-old’s life

A boy who used to undergo 500 existence-threatening suits a month is ready to have a good time his 1,000th seizure-free day, thanks to medical hashish. Alfie Dingley, who suffers from extreme epilepsy, is one in all just three people inside the UK to have been exceeded an NHS prescription for the drug.

Mum Hannah Deacon says the cannabis – which changed into legalized for medicinal use on November 1, 2018 – has made a massive difference to the eleven-12 months-vintage’s lifestyles. Yet thousands of humans are nonetheless not able to access funded prescriptions, with households compelled to spend lots of kilos a month to head private, or purchase the drug illegally.

National Institute for Health and Care Excellence steerage allows ­clinicians to prescribe medical hashish if the proof indicates it could be useful.

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But the British Paediatric and Neurology Association does not help the use of complete plant medicinal hashish, which includes the psychoactive ingredient THC, claiming that the corporations generating the goods have no longer undertaken the required medical trials to show their protection.

Hannah, 43, who co-founded MedCan Support for families seeking to access the drug, said this stance has created what she described as “a block” on NHS prescriptions.

She instructed how medical hashish had given Alfie again his “best of lifestyles”, allowing him to wait college full-time and start making buddies. But she said: “Some people have no choice but to spend £24,000 a year during a cost-of-living crisis just to keep their child safe.

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“We see households fundraising, which is demoralizing, but others are going to the illegal market, where they don’t understand what’s within the product and they’re risking prosecution.

“As many as 1.Eight million human beings use unlawful hashish for medical motives. The Government has a duty to keep them secure.” Alfie, who commenced having seizures whilst he became a child and is also autistic, has a funded ­prescription for Bedrolite – a CBD oil that carries much less than 1% THC and seven. Five% CBD.

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He made history in June 2018 while the Home Office gave his medical doctor the primary license to prescribe clinical cannabis. Today, Alfie marks his 985th day with out a seizure – and next month he will hit the milestone of 1,000. Hannah stated: “Alfie is evidence it works… it’s miles secure for him.

“It is not a miracle therapy as he nevertheless has an epilepsy situation, however because the seizures are not occurring, it has helped him sleep and engage. “It has given him a high-quality of life. He’s analyzing – earlier than, he couldn’t say more than two or three sentences – and he is gaining knowledge of and information everyday relationships and asking questions. He has made friends and as a end result, I even have made pals.”

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Hannah, who is also mum to eight-year-old Annie, knows of 80 other families who are currently paying for the same CBD oil Alfie receives. She said “inaction” in the sector had left her frustrated, but she is keen to meet the new Health Secretary Steve Barclay to discuss making medical cannabis more accessible.